Last time I posted was November. I got a bit behind on blogging, partly because of external events such as the tragedy in Sandy Hook, which ended up with me feeling incredibly overloaded by the media, social networking and blogging reference to it and pushed me into a bit of a hiatus from technology, and partly because of family events.
December was, of course, Christmas, which is always busy for anyone with kids. It went really well! Freyja was pretty well behaved, I was pretty well behaved, and all in all it went by happy. We had dinner at the house of Rosie's godparents, who are parents to one of Freyja's oldest friends. We laughed lots, Freyja and I shouted very little, so an improvement on years past.
January brought big changes in our home. Lee's son Daniel, my wonderful stepson, moved over to live with us along with a friend of his, hoping to get work in Canada, as it is so scarce back in the UK. We had some trepidation about it. They are young men, 21 years old, and being trapped in a house with two young kids and their parents wouldn't be much fun. Last time Dan had lived with us, he had been homesick, down and really just plain unhappy.
It has been so different this time. He seems really settled, has told us how happy he is to be living with us this time, that the time just felt right. Three months on and he is living with us, contributing to family life in a way we can barely remember a time before he joined us, working as many hours as he can get, and really interacting with his sisters. His friend, however, felt much like Dan did last time, and without the advantage of Canadian Citizenship has returned to the UK. The time was not right for him.... yet...
All of this change and upheaval could have caused a great deal of stress for me, and for Freyja, and I was truly expecting some major issues, but I needn't have feared. Since Dan's friend left especially, we have been able to settle down into the family unit we always wished we could be. Lee and I have always felt that our family would not be complete until Daniel joined it. His sisters finally have their brother with them to hug and play with, and because of that, Freyja has blossomed.
We had noticed a return of some of the old behaviours, but only slightly, and that, along with a shorter concentration span after 2pm and an increased appetite in the evening, flagged up that her medication was wearing off sooner. We arranged a visit to the doctor, and he increased her dosage of Concerta to 36mg. I was worried that it would spark problems with decreased appetite and sleep issues again, but she has been on the higher dose for a few weeks now and all is good. She even got chosen as the person in her class to win an award at school, for always being prepared for class and ready to learn. She was so proud to get it as she did not know anything about it, and she was even more surprised when she realised Lee and I were there to see her presented with it.
I also had my dosage increased and have been taking 72mg of Concerta daily. I've been on this several months now and I think I have found my correct level. I can't say I have noticed my eating that much less, but I have lost around 15 pounds and am having issues with getting to sleep. I'm not worrying though, as I had about 60 pounds that I needed to lose anyway, and the sleep thing will sort itself out with time, and if necessary, with melatonin.
This week has brought the biggest threat to Freyja's behaviour, her 8th birthday combined with the tragic death of her best friends dad, but despite the conflict of emotions that those things bring, she has been incredibly mature and controlled about it all. She is acting as companion for her friend who returns to school today, and her thoughts are not of herself, but of her friend.
Yesterday, her birthday, I forgot to give her the meds, and while she was hyper and loud as heck last night in the run up to present opening and bed, she was still way more under control of herself than the girl of last year. She was more hyper than the average kid, and it was a definite reminder to make sure she has her meds, but it was also something that showed us that she is maturing and that maybe we can decrease the dosage on weekends or holidays, when she doesn't have to concentrate on school work, but maybe just take the edge off, so I think, next weekend, instead of taking two 18mg tablets each morning, I will just give her one each day and see how the weekend plays out. If she can still keep a reign on her moods, and listen when she needs to, then we may continue that so that she can feel more hungry at the weekends and maybe help with her eating and growth.
It sure is a juggling match, all this stuff, but when I look back to last year, we have come a long way!
The Defiant Ones
Thursday 11 April 2013
Wednesday 14 November 2012
It's all about me....
And actually, it is.
A year ago, I was convinced Freyja was ADHD, but if someone had suggested to me that I was too, I would have quite literally laughed in their face. After all, I am a mother in my mid thirties, I got through high school and University, I have functioned in the working world since I was 21, often in jobs which required intense organisational skills, so how could I possibly be ADHD? Right? Wrong!!!!
The major problem I had recognising her behaviours in myself was my memory. I basically had very little memory of being younger than 8 years old, the age she will soon be. I have never really been able to remember being a child, and have had a great deal of difficulty putting myself in her shoes, or indulging in child's play with her, as it is not something I could associate with.
Since we began the counselling, and started the path to diagnosing Freyja, I started to see the similarities at first between myself and my mother when I was a kid. I had thought that maybe my Mom simply wasn't great with kids, which is something she said herself, but came to realise that it was a similar personality clash that I was now repeating with Freyja, which then made me ask the deeper question of 'why' and slowly I started to remember bits and pieces.
I moved when I was 6, from a town where my grandparents lived and I saw them daily, to a small village where I only saw my family at weekends. I had friends at the school in the town where I had lived, had been popular at school, and was transplanted to a village where everyone knew everyone, except me and one other new girl, and my Dad now tells me I took it very badly. I am guessing that the lack of earlier memories is, in a way, a suppression of the good memories, in the way that some people repress bad memories. I specifically remember someone asking me when I was 15 about childhood memories and me telling them I had none before I was 8. This isn't something that came with the passage of time, its something I switched off early.
I could remember that the move was traumatic though. I could remember that I had been happy with friends and then suddenly was unhappy and bullied. It was one of the reasons I wanted us to emigrate before Freyja was in school, to lessen the impact. I had not realised that she would still suffer the same trauma at such a young age. Maybe that is one of the factors that worsened our subsequent behaviours.
Anyway, as the counselling sessions continued, and as I talked to my parents each weekend via webcam about what was discussed, it became clearer and clearer that Freyja was a lot like me - maybe she has been worse, but lets face it, times have changed. 30 years ago, if you spoke back to parents, grandparents, teachers or neighbours, you'd have gotten a clip around the ear or a smacked backside. You learnt fast that while you may think it, you sure as hell didn't say it. These days, that kind of thing is frowned upon, and as I can tell you from experience, the ADHD child and time outs / naughty steps etc do not mix. You can put them in a time out for two minutes, they will play with anything in sight, get up repeatedly, shout, cry, and after the two minutes, can't even remember why they were there in the first place. Corporal punishment isn't exactly an ideal, but it did have the advantage of the 'short, sharp shock' which was memorable, even to kids like me, but I don't want to be smacking my daughters behind 20 times a day, so other methods needed to be considered.
Anyhow, I had tantrums, argued with my mother (but not my Dad - so familiar), flitted from one thing to another quickly losing interest. But the clincher, the thing which really highlighted it for me, was the fact that I did really well in exams, but badly in coursework, right through school and into University. I always left everything to the last minute, research, assignments, revision for exams. Lots of burning the candle at both ends. I needed the pressure and the stress to force me to concentrate or I'd get distracted. All through school my reports read, "Lisa is bright and helpful but does not reach her full potential. Gets distracted chatting to friends. Must try harder." Always I achieved average, or slightly above average grades, but always my teachers told my parents I could achieve so much more, was one of the brightest and most imaginative kids in the class, but just wasn't achieving my potential. Every parents evening and report card ended with me in tears of frustration, telling my parents I had tried my best, them reassuring me that as long as I had done that, then I could do no more, but always I knew that I was capable of more, I just didn't know how to achieve it.
I went into the workplace and I excelled at organisation in busy, multi-tasking jobs, but quickly lost interest in the jobs where there was not the high levels of pressure. I didn't move up in companies, I had no wish to, but I did well in the jobs that interested me, moved on quickly from those that did not.
Things changed when I got pregnant with Freyja. I got less organised. I blamed 'baby brain'. But it never came back. Too many sleepless nights and things to juggle at home, as well as at work. I have been coasting along for the last few years in a job I liked, but it was and is pretty repetitive. Its good when its busy, but when things quiet down and the pressure is off, I was getting distracted again.
When I filled out the questionnaires with the doctor to get assessed myself, I did one relating to me now, and one relating to my memories of how I was as a teen. I actually said on reading the results that I was surprised I managed to achieve anything. I was always late to bed, always late up, rushing last minute to get ready for school, missing my bus, forgetting my bag, losing my wallet or keys, (that hasn't changed - I have misplaced my debit card so many times this last couple years I have lost count and have actually had to have it replaced 4 times! in the last 18 months!)
Apparently, because ADHD just wasn't really recognised when I was a kid, we developed coping mechanisms and actually became highly organised individuals when enough pressure was placed on us to become so, but without that pressure, and the clarity it brings, our minds fogged and we slipped back into distraction. It becomes a repeating pattern and it holds you back - something I clearly do not want my kids to experience.
So now I am on the Concerta too. I won't say it is a great success yet, as we are still upping the dosage a little at a time, but I will say that each time I begin a higher dosage it makes things so much clearer. A lady I know has also been diagnosed ADD, along with her son, and when she started her meds she described it as suddenly having so much room in her head. I totally agreed with that. You suddenly start to realise how 'normal' people function. You can get jobs done, when you intend doing them, instead of getting distracted 5 times by other things.
Each time I get a higher dosage, it gets better, and then as my body adjusts, the clarity recedes a bit, but less each time. I am about to up the dosage again this week for me, and I hope that it will be the last one. We have noticed a difference, but just as Freyja's wears off in the evening, so does mine, and I need it to last that bit later so I can be organised enough to get her and her sister into bed at the proper time, do a few chores and then let it wear out as I have a while to relax before I head to bed.
So, we are both a work in progress, and while she still shouts at me, its not quite so bad as it used to be (though the last couple weeks she has been a bit worse for that), but I don't react as badly, and that in itself diffuses things and does not feed into her moods. Without my reaction, she has no battle to win and gives up sooner.
One side effect, is my renewed clarity during the day has made me realise that my job is not challenging enough and I am hoping that a new opportunity at my workplace may come up - it has been mentioned and I have been told it is mine if funding is approved for it, so fingers crossed on that.
A year ago, I was convinced Freyja was ADHD, but if someone had suggested to me that I was too, I would have quite literally laughed in their face. After all, I am a mother in my mid thirties, I got through high school and University, I have functioned in the working world since I was 21, often in jobs which required intense organisational skills, so how could I possibly be ADHD? Right? Wrong!!!!
The major problem I had recognising her behaviours in myself was my memory. I basically had very little memory of being younger than 8 years old, the age she will soon be. I have never really been able to remember being a child, and have had a great deal of difficulty putting myself in her shoes, or indulging in child's play with her, as it is not something I could associate with.
Since we began the counselling, and started the path to diagnosing Freyja, I started to see the similarities at first between myself and my mother when I was a kid. I had thought that maybe my Mom simply wasn't great with kids, which is something she said herself, but came to realise that it was a similar personality clash that I was now repeating with Freyja, which then made me ask the deeper question of 'why' and slowly I started to remember bits and pieces.
I moved when I was 6, from a town where my grandparents lived and I saw them daily, to a small village where I only saw my family at weekends. I had friends at the school in the town where I had lived, had been popular at school, and was transplanted to a village where everyone knew everyone, except me and one other new girl, and my Dad now tells me I took it very badly. I am guessing that the lack of earlier memories is, in a way, a suppression of the good memories, in the way that some people repress bad memories. I specifically remember someone asking me when I was 15 about childhood memories and me telling them I had none before I was 8. This isn't something that came with the passage of time, its something I switched off early.
I could remember that the move was traumatic though. I could remember that I had been happy with friends and then suddenly was unhappy and bullied. It was one of the reasons I wanted us to emigrate before Freyja was in school, to lessen the impact. I had not realised that she would still suffer the same trauma at such a young age. Maybe that is one of the factors that worsened our subsequent behaviours.
Anyway, as the counselling sessions continued, and as I talked to my parents each weekend via webcam about what was discussed, it became clearer and clearer that Freyja was a lot like me - maybe she has been worse, but lets face it, times have changed. 30 years ago, if you spoke back to parents, grandparents, teachers or neighbours, you'd have gotten a clip around the ear or a smacked backside. You learnt fast that while you may think it, you sure as hell didn't say it. These days, that kind of thing is frowned upon, and as I can tell you from experience, the ADHD child and time outs / naughty steps etc do not mix. You can put them in a time out for two minutes, they will play with anything in sight, get up repeatedly, shout, cry, and after the two minutes, can't even remember why they were there in the first place. Corporal punishment isn't exactly an ideal, but it did have the advantage of the 'short, sharp shock' which was memorable, even to kids like me, but I don't want to be smacking my daughters behind 20 times a day, so other methods needed to be considered.
Anyhow, I had tantrums, argued with my mother (but not my Dad - so familiar), flitted from one thing to another quickly losing interest. But the clincher, the thing which really highlighted it for me, was the fact that I did really well in exams, but badly in coursework, right through school and into University. I always left everything to the last minute, research, assignments, revision for exams. Lots of burning the candle at both ends. I needed the pressure and the stress to force me to concentrate or I'd get distracted. All through school my reports read, "Lisa is bright and helpful but does not reach her full potential. Gets distracted chatting to friends. Must try harder." Always I achieved average, or slightly above average grades, but always my teachers told my parents I could achieve so much more, was one of the brightest and most imaginative kids in the class, but just wasn't achieving my potential. Every parents evening and report card ended with me in tears of frustration, telling my parents I had tried my best, them reassuring me that as long as I had done that, then I could do no more, but always I knew that I was capable of more, I just didn't know how to achieve it.
I went into the workplace and I excelled at organisation in busy, multi-tasking jobs, but quickly lost interest in the jobs where there was not the high levels of pressure. I didn't move up in companies, I had no wish to, but I did well in the jobs that interested me, moved on quickly from those that did not.
Things changed when I got pregnant with Freyja. I got less organised. I blamed 'baby brain'. But it never came back. Too many sleepless nights and things to juggle at home, as well as at work. I have been coasting along for the last few years in a job I liked, but it was and is pretty repetitive. Its good when its busy, but when things quiet down and the pressure is off, I was getting distracted again.
When I filled out the questionnaires with the doctor to get assessed myself, I did one relating to me now, and one relating to my memories of how I was as a teen. I actually said on reading the results that I was surprised I managed to achieve anything. I was always late to bed, always late up, rushing last minute to get ready for school, missing my bus, forgetting my bag, losing my wallet or keys, (that hasn't changed - I have misplaced my debit card so many times this last couple years I have lost count and have actually had to have it replaced 4 times! in the last 18 months!)
Apparently, because ADHD just wasn't really recognised when I was a kid, we developed coping mechanisms and actually became highly organised individuals when enough pressure was placed on us to become so, but without that pressure, and the clarity it brings, our minds fogged and we slipped back into distraction. It becomes a repeating pattern and it holds you back - something I clearly do not want my kids to experience.
So now I am on the Concerta too. I won't say it is a great success yet, as we are still upping the dosage a little at a time, but I will say that each time I begin a higher dosage it makes things so much clearer. A lady I know has also been diagnosed ADD, along with her son, and when she started her meds she described it as suddenly having so much room in her head. I totally agreed with that. You suddenly start to realise how 'normal' people function. You can get jobs done, when you intend doing them, instead of getting distracted 5 times by other things.
Each time I get a higher dosage, it gets better, and then as my body adjusts, the clarity recedes a bit, but less each time. I am about to up the dosage again this week for me, and I hope that it will be the last one. We have noticed a difference, but just as Freyja's wears off in the evening, so does mine, and I need it to last that bit later so I can be organised enough to get her and her sister into bed at the proper time, do a few chores and then let it wear out as I have a while to relax before I head to bed.
So, we are both a work in progress, and while she still shouts at me, its not quite so bad as it used to be (though the last couple weeks she has been a bit worse for that), but I don't react as badly, and that in itself diffuses things and does not feed into her moods. Without my reaction, she has no battle to win and gives up sooner.
One side effect, is my renewed clarity during the day has made me realise that my job is not challenging enough and I am hoping that a new opportunity at my workplace may come up - it has been mentioned and I have been told it is mine if funding is approved for it, so fingers crossed on that.
Thursday 1 November 2012
8 months on...
Today is November 1st, and exactly 8 months ago, I started this blog.
I know, I know.... I haven't exactly been keeping up my end of the bargain by keeping it updated, but I really couldn't quite get my head around things and put everything into words before. I think I am ready to give it a go now though.
The 8 months has been the longest, scariest, most surprising rollercoaster ride I have ever been on.
Since Freyja was diagnosed, we tried Vyvanse, which made everything so much worse and resulted in three months of living with the embodiment of the kid from The Exorcist. We told the doc we wanted to stop the meds and he offered us an alternative one. After a few weeks off the Vyvanse, we took him up on the offer and she started Concerta. It has been an amazing transformation to watch. We tried 18mg, and then 27 mg, and now she is back into school we are waiting to see whether or not the dosage will need one last tweak. It seems to be wearing off around 4-5pm now which means she is getting through the school day but has problems sustaining her concentration in the evening for activities, and the homework she will soon start getting.
The downside to getting a higher dosage is the effect it has on her already tiny appetite and her sleep patterns. Since starting the meds, she has been taking melatonin most nights to help her sleep. One of the side effects can be insomnia, though thankfully once she is asleep she now seems to have less nightmares.
Freyja has always been a picky eater and since starting the medication it has become worse. She often complains of feeling nauseous and of having stomach aches, but I am beginning to think that it is actually her lack of eating that is causing these issues rather than the medication.. Her eating issues have been going on since we moved to Canada, and we knew food was her control thing. When she couldn't get her own way in other things she did it by refusing to eat. Since starting the medication she has lost weight (thankfully she was carrying a little weight before, so she is not scary skinny, but still skinny for the kid who has alwas been well built). Her already limited list of likes appears to have gotten smaller and finding something to feed her is getting really tough. People keep telling me to just give her what I want her to eat and she will eat it eventually, that no kid will starve themselves, but I have seen her eating habits, she already eats about half the quantity her two year old sister eats, and she is still healthy, still growing, but I always have that worry in my mind that a child who uses food for control could end up with anorexia or bulemia as a teenager. Because of that I have had long talks with her about that, asked her if she feels fat, asked her if she wants to be skinny like some of the other girls in school, and the answer is always a resounding "NO". So, I am thinking maybe she has some digestive issues that are causing the problems, maybe an alergy that is causing the stomach pains and nausea.
Other than that possible side effect, she is doing fantastically well. Her concentration at school has improved greatly, her mood swings have almost disappeared except for the usual kid moods. She still struggles to get ready in the morning (before the meds kick in) and get to bed in an evening (after the meds have worn off) but some of that has been down to me and my own inability to organise and get stuff done - more on that in the next post - so we are getting there, slowly but surely. Most of the remaining issues tend to be related to me rather than others, so now I am getting myself sorted too and we seem to be making headway.
So way back then, we wondered if we were doing the right thing, and honestly there were times that I really thought we had made a terrible mistake, but looking at the girl I see now, I know we did right and I know that, hard as the road has been and no doubt will be in the future, it was the right road to take.
I know, I know.... I haven't exactly been keeping up my end of the bargain by keeping it updated, but I really couldn't quite get my head around things and put everything into words before. I think I am ready to give it a go now though.
The 8 months has been the longest, scariest, most surprising rollercoaster ride I have ever been on.
Since Freyja was diagnosed, we tried Vyvanse, which made everything so much worse and resulted in three months of living with the embodiment of the kid from The Exorcist. We told the doc we wanted to stop the meds and he offered us an alternative one. After a few weeks off the Vyvanse, we took him up on the offer and she started Concerta. It has been an amazing transformation to watch. We tried 18mg, and then 27 mg, and now she is back into school we are waiting to see whether or not the dosage will need one last tweak. It seems to be wearing off around 4-5pm now which means she is getting through the school day but has problems sustaining her concentration in the evening for activities, and the homework she will soon start getting.
The downside to getting a higher dosage is the effect it has on her already tiny appetite and her sleep patterns. Since starting the meds, she has been taking melatonin most nights to help her sleep. One of the side effects can be insomnia, though thankfully once she is asleep she now seems to have less nightmares.
Freyja has always been a picky eater and since starting the medication it has become worse. She often complains of feeling nauseous and of having stomach aches, but I am beginning to think that it is actually her lack of eating that is causing these issues rather than the medication.. Her eating issues have been going on since we moved to Canada, and we knew food was her control thing. When she couldn't get her own way in other things she did it by refusing to eat. Since starting the medication she has lost weight (thankfully she was carrying a little weight before, so she is not scary skinny, but still skinny for the kid who has alwas been well built). Her already limited list of likes appears to have gotten smaller and finding something to feed her is getting really tough. People keep telling me to just give her what I want her to eat and she will eat it eventually, that no kid will starve themselves, but I have seen her eating habits, she already eats about half the quantity her two year old sister eats, and she is still healthy, still growing, but I always have that worry in my mind that a child who uses food for control could end up with anorexia or bulemia as a teenager. Because of that I have had long talks with her about that, asked her if she feels fat, asked her if she wants to be skinny like some of the other girls in school, and the answer is always a resounding "NO". So, I am thinking maybe she has some digestive issues that are causing the problems, maybe an alergy that is causing the stomach pains and nausea.
Other than that possible side effect, she is doing fantastically well. Her concentration at school has improved greatly, her mood swings have almost disappeared except for the usual kid moods. She still struggles to get ready in the morning (before the meds kick in) and get to bed in an evening (after the meds have worn off) but some of that has been down to me and my own inability to organise and get stuff done - more on that in the next post - so we are getting there, slowly but surely. Most of the remaining issues tend to be related to me rather than others, so now I am getting myself sorted too and we seem to be making headway.
So way back then, we wondered if we were doing the right thing, and honestly there were times that I really thought we had made a terrible mistake, but looking at the girl I see now, I know we did right and I know that, hard as the road has been and no doubt will be in the future, it was the right road to take.
Tuesday 18 September 2012
How far we've come
So, its been a while simce I posted and there is a really valid excuse for that which I will expand on in my next post, but for now a recap and an update on Miss Freyja.
Freyja was probably about 4 when me and Lee kind of thought she was ADD. She had trouble listening and remembering things you'd ask her to do, yet her memory in other ways was amazing.
She was talking early and knew her alphabet and numbers up to 40 or so by the time she was 2. At 3 she could write letters and numbers (though occasionally she would write like she was mirror writing - funnily enough as a side note, Da Vinci did that and they say he was classic ADD!)
When she was 4 she started preschool and was already ahead of the kids, so we thought we would try to teach her to read at home and she seriously railed against it. She just wouldn't do it, even though we knew she could if she tried. She would always mess around in dance class and swimming class, never listening to the teacher, talking over people, interrupting constantly.
My parents said she was just like me as a kid and she'd grow out of it, but she didn't. (Turns out she was just like me and I'm ADD too! I told you I had a valid reason!)
At 5 we put her in French Immersion Kindergarten thinking that would help her as we thought maybe she was just bored in the preschool as she was so far ahead, but she struggled and hated it. I suggested to her teacher that she may be ADHD/ADD and she virtually laughed at me.
As soon as she moved to Grade 1 in the english school, she came on in leaps and bounds but always the same comment from her teacher, Freyja didn't finish her work, Freyja missed recess to finish something, Freyja is always the last to finish. At the Parent Teacher meeting at the end of the first term the same things were said again and I told the teacher that I thought Freyja may be ADD, she didn't laugh but said she wasn't sure. The following week we called and made an appointment with our family doctor and were refered.
She was diagnosed ADD just before the Easter vacation. She hated being different, but to me it was a relief. It was a relief to find out I was ADD too. It explains so much, and it also gives you a foundation to work from, rather than your child is lazy, your child is rude, your child is too rough with her classmates etc. I try to tell Freyja, ADHD is not a catchall excuse for everything, but knowing you have it reminds you that you have to watch what you do in certain situations so you don't do or say something wrong.
I felt very guilty for giving my daughter a label, but at the same time, ADD is also often a label for people labelled as gifted, imaginitive, independant, innovative, really, I can't wish she didn't have it, or I didn't have it. Its there and you either work with it or against it. Pretending it isn't there does not make it go away, it just makes you more and more frustrated with your own failings. I'm nearing 40 and I still remember my disappointment and frustration with every report card and teacher meeting - could do better, needs to concentrate.
Freyja is being treated, and after a glitch with the first medication Vyvanse, we switched to Concerta just as school was coming to an end in June. The difference has been amazing, at school and at home. There is less anger and arguement at home (though like all 7 year olds she still tries to push the rules and boundaries occasionally).
Last week we went in for her first parent teacher meeting with her brand new teacher, new to the school, no one had told her Freyja was ADD. Her description of Freyja, helpful, clever, ATTENTIVE, CONCENTRATES AND LISTENS WELL IN CLASS!!!!! We are working with her ADD, using meds and techniques to help, and she is already forging ahead, proud of herself because she is reading a chapter book by herself - in her own words, I am taking a long time as I read it slowly but I am reading it all by myself! A year ago she would have been raging, screaming, throwing the book in frustration at not being able to do it.
And there you go. I apologise for rambling...... I am ADD you know! :D
Freyja was probably about 4 when me and Lee kind of thought she was ADD. She had trouble listening and remembering things you'd ask her to do, yet her memory in other ways was amazing.
She was talking early and knew her alphabet and numbers up to 40 or so by the time she was 2. At 3 she could write letters and numbers (though occasionally she would write like she was mirror writing - funnily enough as a side note, Da Vinci did that and they say he was classic ADD!)
When she was 4 she started preschool and was already ahead of the kids, so we thought we would try to teach her to read at home and she seriously railed against it. She just wouldn't do it, even though we knew she could if she tried. She would always mess around in dance class and swimming class, never listening to the teacher, talking over people, interrupting constantly.
My parents said she was just like me as a kid and she'd grow out of it, but she didn't. (Turns out she was just like me and I'm ADD too! I told you I had a valid reason!)
At 5 we put her in French Immersion Kindergarten thinking that would help her as we thought maybe she was just bored in the preschool as she was so far ahead, but she struggled and hated it. I suggested to her teacher that she may be ADHD/ADD and she virtually laughed at me.
As soon as she moved to Grade 1 in the english school, she came on in leaps and bounds but always the same comment from her teacher, Freyja didn't finish her work, Freyja missed recess to finish something, Freyja is always the last to finish. At the Parent Teacher meeting at the end of the first term the same things were said again and I told the teacher that I thought Freyja may be ADD, she didn't laugh but said she wasn't sure. The following week we called and made an appointment with our family doctor and were refered.
She was diagnosed ADD just before the Easter vacation. She hated being different, but to me it was a relief. It was a relief to find out I was ADD too. It explains so much, and it also gives you a foundation to work from, rather than your child is lazy, your child is rude, your child is too rough with her classmates etc. I try to tell Freyja, ADHD is not a catchall excuse for everything, but knowing you have it reminds you that you have to watch what you do in certain situations so you don't do or say something wrong.
I felt very guilty for giving my daughter a label, but at the same time, ADD is also often a label for people labelled as gifted, imaginitive, independant, innovative, really, I can't wish she didn't have it, or I didn't have it. Its there and you either work with it or against it. Pretending it isn't there does not make it go away, it just makes you more and more frustrated with your own failings. I'm nearing 40 and I still remember my disappointment and frustration with every report card and teacher meeting - could do better, needs to concentrate.
Freyja is being treated, and after a glitch with the first medication Vyvanse, we switched to Concerta just as school was coming to an end in June. The difference has been amazing, at school and at home. There is less anger and arguement at home (though like all 7 year olds she still tries to push the rules and boundaries occasionally).
Last week we went in for her first parent teacher meeting with her brand new teacher, new to the school, no one had told her Freyja was ADD. Her description of Freyja, helpful, clever, ATTENTIVE, CONCENTRATES AND LISTENS WELL IN CLASS!!!!! We are working with her ADD, using meds and techniques to help, and she is already forging ahead, proud of herself because she is reading a chapter book by herself - in her own words, I am taking a long time as I read it slowly but I am reading it all by myself! A year ago she would have been raging, screaming, throwing the book in frustration at not being able to do it.
And there you go. I apologise for rambling...... I am ADD you know! :D
Tuesday 24 April 2012
One step forward and two steps back..
So it’s been a month since my last post, and to be honest,
that’s because of how frustrated I have been as well as busy.
After 2nd appointment with Michelle in the
Behavioural Unit, she had seen some of Freyja’s behaviours, but really she had
been pretty good, and didn’t argue with me (until one minute after we left the
office – sigh!), but a few days later we had the appointment with the
Paediatrician and she was herself for that – oh boy, was she!
After an hour of trying to hold a conversation with her, and
Lee and I, while she jumped up on the bed, and off, and on, and off (repeat as
necessary for one full hour), swung her feet over the edge of it so she kept “accidentally”
kicking his computer monitor, and declaring repeatedly over the top of his
questions “sigh! I’m BORED!!!” he got
the idea and agreed, Yes, she’s ADHD.
Despite the repeated jumping about, he says she veers more to the
Attention Deficit side than the hyperactive side.
So he offered us medication, and to be honest, we nearly
snapped his hand off to get it. 2 days
later, we had the prescription and she started taking 20mgs of Vyvanse each
morning. Vyvanse is an amphetamine but
its slow release and in such a low dosage, it basically just gives them enough
to sharpen their focus.
The first day, she was wired, talked for about 6 hours
non-stop, but never argued, did what she was asked to do and was super helpful
all day. Day Two, she woke up at 3.30am
and never went back to sleep, so neither did I.
Rosie woke up at 6am with a fever, so the day was spent with a tired
Mama and a grouchy baby sister. But
never once did she complain I was ignoring her and giving all the attention to
Rosie or say she was bored while I cleaned house. Instead she occupied Rosie and kept her
smiling while I cleaned. Went and got
them both snacks and drinks. Was the
girl I knew she wants to be.
It lasted about ten days.
It was the best week ever! No arguments,
no whining, no fussing (well the usual stuff but like any kid does, not like an
ADHD kid does. Then, as her body must
have adjusted to the medication we noticed she was getting more irritable
again, more argumentative, coming back from school complaining she hadn’t had
time to finish things again. At first I
thought it might be caused by excitement about her pending birthday and party,
but that came and went and still she was getting worse.
If anything, she is worse now than ever. For 5 nights in a row, I had to cajole,
argue, carry, shout her into bed through 45-60 minutes of arguing and whining,
shouting and screaming, hitting and kicking.
I just about broke down. The
thing that made me feel worse than anything is that she is the one getting the
most hurt by all of this. She hates the
way she acts, she hates that she can’t concentrate. She hates that she had a ten day glimpse of
what it is like to be “normal” and then ended up back to the same thing as
always again.
We have another appointment with Michelle in the Behaviour
Unit in 2 days, and then with the doc in 10 days. I am trying to get snap forms filled out by
her teacher and her day home to try to get the dosage increased. We know it worked; just it’s not enough for
her. My last appointment with Michelle,
Freyja had to come and read a book to Michelle.
After reading some pages, she had to say if the things in the page
described her or not. After a 10 minute
ramble about one page, Michelle asks “Is she always like this?” “No, this is better than normal” I
reply. After I get a confused look as to
how this could possibly be better, I tell her it is because, even though she
has just spent 10 minutes talking about something where 3 or 4 words would have
done, at least she is still discussing the same subject. In the past we would have been way off on a
tangent by then. Michelle then asked me
if Freyja had taken her meds that morning.
Yep, at 7.30am, same as every day.
It is now 9.30am. Michelle tells
me that if the meds were working, she would expect Freyja to be significantly
more focused. We both try to stop Freyja
talking as it is nearly the end of the appointment and she is still rambling on
over the top of us. She has a tantrum
and goes and sits in a corner, squashed in the space between the wall and a
cabinet and refuses to come out. BINGO!!!
Finally, a little glimpse of what she is like when she is getting the
wrong answer (that would be NO by the way) from me.
So, keeping my fingers crossed that the dosage is increased
ASAP. Poor kid thought all she would
have to do is go to the doctors, have them agree it was ADHD and get a pill so
that, boom, she’d be all better. She
never expected all these appointments and forms and questions. She never expected it to take time, and it is
so frustrating for her that it is making her even angrier. And I hate to admit; I am not dealing with it
well. I have my Bad Mommy days, and I
have lost count in the past two weeks of how many times she has said she hates
me, but I am determined to get her through this.
It is only now that I am going through this that I have
realised just how many friends or acquaintances are going through similar
issues with their kids. ADHD, OCD, ODD,
Autism, Asperger’s, the list seems to be endless. I know I am not alone, and that helps, but
why are so many of us going through this these days? Is it just because there is more diagnosis,
or is it because there really are more kids going through these trials and
tribulations? Either way, I am glad to
know that there is help out there for us, maybe not a quick fix that Freyja
would like, but a way forward. Just
gotta keep holding onto that, and remember those 10 wonderful days with a
little girl who was happy and focused and who knew she was loved, and hope that
we can get back there again.
Wednesday 14 March 2012
2nd Appointment this afternoon
I am nervous as it is the first one Freyja has to attend, but kind of weirdly peaceful too. It is a step in the right direction.
We have had a pretty good week. There have been tantrums as always, but bizarrely, she has been behaving better since her baby sister has been behaving worse! Rosie is coming up to 2 years now, and just like Freyja, is becoming very much the independent Miss. That means every time I need to get her into the car, she wants to get in herself and starts screaming and thrashing as I try to strap her into her carseat. I know this is a phase she will get through, but as we are always already running late because Freyja takes forever to get ready (and so do I - Mommy ADHD!) it becomes even more stressful.
Freyja has been telling her sister to stop misbehaving and has been trying to be more helpful.
Last night was actually the best night yet, despite being the busiest. After school, she went to a beginners chess club. Despite being her first game ever, she won it! She is really enthused by the idea of taking up chess and her birthday is coming up so I think I will buy her a set and start going to the monthly chess at the library in Calgary, hopefully it is something she will enjoy. And it shows she can concentrate when she is interested in things. I played chess with my Dad at a similar age, and card games, and I loved it. Partially because I seemed to have a natural ability to remember and anticipate moves, and partly because I won - all the time - and no, my Dad didn't let me win, I just had a flair for it. Hopefully Freyja will get the same enjoyment, as she certainly seems to have the same capacity for remembering and anticipating moves in games.
After chess we went home and found she had homework. Usually, she does not get homework, but at her Parent Teacher meeting last week, the teacher commented that while Freyja is working at Grade 1 level, as she should be, she actually could probably work at Grade 2, but because of the lack of concentration, she always has work left unfinished while the other kids get theirs done, so we said "send it home with her then". They did send it home last night, and asked it be done for today. She finished Chess at 4.30pm and had to be at Sparks at 6.30pm so I was dubious, but she ate her dinner (quickly for once, and only got up twice) and then settled down to her homework, finished it and got ready for Sparks all in time to get out the house, no arguments. Apparently she was really well behaved and attentive at Sparks too, so maybe that is what she needs, more structure and things to do. Maybe all of this isn't really ADHD or behaviour issues, maybe its just a very bright kid who's bored silly.
She's been showing a great interest in space and science lately too, as well as her reading and art. Her choices from Scolastics this months were - A solar system mobile to build - A geology set with rocks and an experiment to 'make your own sedimentary rock' - A Phineus and Ferb science kit with household experiments. She's been having great fun with it all, and can't wait to put everything together. The library books she chooses are often science based too, and the other day when Lee put on a program about the Big Bang Theory, she asked him to see if it was on again and record it for her to watch. As a pupil at a Catholic School, I see her trying to have some interesting debates with the teachers in a few years (as it should be).
And so, I have been doing some reading these past few days, looking at the aspects of ADD or ADHD which can be seen in a positive light - exploration, creativity, enlightenment, and I'll add another post with some links to these and a bit about some famous people who would these days probably be classed as ADHD. This is my challenge to myself now, not to look at the bad side, the tantrums and distractedness, but to look at the good points of how she is 'different' and imagine what she could become if I loosen the reins a little....
We have had a pretty good week. There have been tantrums as always, but bizarrely, she has been behaving better since her baby sister has been behaving worse! Rosie is coming up to 2 years now, and just like Freyja, is becoming very much the independent Miss. That means every time I need to get her into the car, she wants to get in herself and starts screaming and thrashing as I try to strap her into her carseat. I know this is a phase she will get through, but as we are always already running late because Freyja takes forever to get ready (and so do I - Mommy ADHD!) it becomes even more stressful.
Freyja has been telling her sister to stop misbehaving and has been trying to be more helpful.
Last night was actually the best night yet, despite being the busiest. After school, she went to a beginners chess club. Despite being her first game ever, she won it! She is really enthused by the idea of taking up chess and her birthday is coming up so I think I will buy her a set and start going to the monthly chess at the library in Calgary, hopefully it is something she will enjoy. And it shows she can concentrate when she is interested in things. I played chess with my Dad at a similar age, and card games, and I loved it. Partially because I seemed to have a natural ability to remember and anticipate moves, and partly because I won - all the time - and no, my Dad didn't let me win, I just had a flair for it. Hopefully Freyja will get the same enjoyment, as she certainly seems to have the same capacity for remembering and anticipating moves in games.
After chess we went home and found she had homework. Usually, she does not get homework, but at her Parent Teacher meeting last week, the teacher commented that while Freyja is working at Grade 1 level, as she should be, she actually could probably work at Grade 2, but because of the lack of concentration, she always has work left unfinished while the other kids get theirs done, so we said "send it home with her then". They did send it home last night, and asked it be done for today. She finished Chess at 4.30pm and had to be at Sparks at 6.30pm so I was dubious, but she ate her dinner (quickly for once, and only got up twice) and then settled down to her homework, finished it and got ready for Sparks all in time to get out the house, no arguments. Apparently she was really well behaved and attentive at Sparks too, so maybe that is what she needs, more structure and things to do. Maybe all of this isn't really ADHD or behaviour issues, maybe its just a very bright kid who's bored silly.
She's been showing a great interest in space and science lately too, as well as her reading and art. Her choices from Scolastics this months were - A solar system mobile to build - A geology set with rocks and an experiment to 'make your own sedimentary rock' - A Phineus and Ferb science kit with household experiments. She's been having great fun with it all, and can't wait to put everything together. The library books she chooses are often science based too, and the other day when Lee put on a program about the Big Bang Theory, she asked him to see if it was on again and record it for her to watch. As a pupil at a Catholic School, I see her trying to have some interesting debates with the teachers in a few years (as it should be).
And so, I have been doing some reading these past few days, looking at the aspects of ADD or ADHD which can be seen in a positive light - exploration, creativity, enlightenment, and I'll add another post with some links to these and a bit about some famous people who would these days probably be classed as ADHD. This is my challenge to myself now, not to look at the bad side, the tantrums and distractedness, but to look at the good points of how she is 'different' and imagine what she could become if I loosen the reins a little....
Tuesday 6 March 2012
Ist Appointment done
Well, we were there for 3 hours! Who knew we had so much to say! Poor Lee was nearly falling asleep by the time we left, he had just come off nightshift, and I was an emotional wreck.
Lots of stuff came out that I wasn't expecting. Mainly my fears of it being "all my fault" in one way or another. Most of her "bad" or "Difficult" behaviour is the stuff that revolves around me and my response to her. We kind off feed off each other emotionally, but in a bad way rather than good. She is so like me, I started to notice in the questions we were asked that the behaviours that she is showing are my behaviours, the ones that made my mother crazy, the ones that Lee tells me remind him of my mother (We are all carbon copies of one another - we ever all look alike). Actually, the night before I was getting a bit emotional at dinner (hormones kicking in as AF was about to arrive) and started getting annoyed because she was yet again not eating her dinner. I started to cry as I felt so bad about tellin her off yet again and hugged her and apologied for raising my voice. As I did so, I caught sight of us in the mirror (we have a mirrored wall - rented house - not my choice!) and there she was, MY MOTHER! I looked just like her when she would get all hormonal and upset when I was a kid. Freyja looked just like me when I'd hug my Mum and apologise for doing wrong and tell her it was going to be OK. History was so obviously repeating itself here and I think that is why in the meeting I just broke down.
My Mum and I had an amazing relationship when we were still in England, she was (and still is), my best friend (apart from Lee of course), but it wasn't always that way. When I was a kid, our relationship was so volatile. Always shouting and crying, always feeling bad but never able to put it right. When I was about 10, my parents spend a few months apart. My Mum had married at 18 and had me at 19, and kind of felt she was missing out on stuff. It didn't take her long to realise that she wasn't, but those few months, whilst they were incredibly hard, were the best thing to happen to us as a family. She and my Dad realised just how much they absolutely could not be without one another, and she and I were only together Friday night through Saturday. We didn't have time to argue about the petty, silly things and spent real quality time together. We found out, firstly, how much we cared about and loved one another, and secondly, how incredibly alike we were. Our relationship from then on was great, to the point where my Dad admitted to feeling a little jealous as we were spending so much time together. Anyway, enough of the past, back to the present...
So, one surprising thing that came out of it all was not just that they asked us to fill out questionnaires about her behaviour, but I was also given one to fill out about mine (along with Lee as he is on the outside looking in - usually shaking his head and sighing) as I may end up getting assessed myself for Adult ADHD. The thing is though, at the beginning of the meeting I would have been incredulous at such a thing being suggested. But when we had been through the meeting and she suggested it as a possibility, it made more sense than I would like to admit. Most of the things Freyja does that seem obsessive and incredibly annoying, are that way because they go against my obsessive and annoying things that I do.
Oh, I should mention, that after years of struggling, and weeks of telling my parents that we were beginning the process, during which my mother has always said I was never that bad, my parents suddenly decided to tell me that I used to have almighty tantrums where I would stop breathing, right up until I was 7 or 8! Maybe they could have mentioned this sooner.
So now, we are into the process, and I have bared my soul. While the depression flags come more from Lee's side, the ADHD flags come from me and my mother (have I mentioned she has been known to break down and leave a store because the reorganised over the weekend and things weren't in their right places! I have never done that - though I might have sworn when they have done that I have never cried and left - dear god, I am turning into my mother and Freyja is turning into me - poor kid!! )
We have another appointment next week with the person at the clinic where Freyja will be going (the parent one was the starter) - I have no idea what her job title is, I just know she has a degree in Social Work - and then the week after that we see the Paediatrician for the first time.
At least I am not scared now. She told me not to feel a bad mother, as I have proved I am the opposite by making this step. I know everyone has been telling me this, but it feels good when the professionals tell you that - even if you still don't feel it as you carry your screaming, flailing child into her room for a time out, checking the clock on the way and starting the mantra.... two more hours.... two more hours.... only two more hours until bed time
Lots of stuff came out that I wasn't expecting. Mainly my fears of it being "all my fault" in one way or another. Most of her "bad" or "Difficult" behaviour is the stuff that revolves around me and my response to her. We kind off feed off each other emotionally, but in a bad way rather than good. She is so like me, I started to notice in the questions we were asked that the behaviours that she is showing are my behaviours, the ones that made my mother crazy, the ones that Lee tells me remind him of my mother (We are all carbon copies of one another - we ever all look alike). Actually, the night before I was getting a bit emotional at dinner (hormones kicking in as AF was about to arrive) and started getting annoyed because she was yet again not eating her dinner. I started to cry as I felt so bad about tellin her off yet again and hugged her and apologied for raising my voice. As I did so, I caught sight of us in the mirror (we have a mirrored wall - rented house - not my choice!) and there she was, MY MOTHER! I looked just like her when she would get all hormonal and upset when I was a kid. Freyja looked just like me when I'd hug my Mum and apologise for doing wrong and tell her it was going to be OK. History was so obviously repeating itself here and I think that is why in the meeting I just broke down.
My Mum and I had an amazing relationship when we were still in England, she was (and still is), my best friend (apart from Lee of course), but it wasn't always that way. When I was a kid, our relationship was so volatile. Always shouting and crying, always feeling bad but never able to put it right. When I was about 10, my parents spend a few months apart. My Mum had married at 18 and had me at 19, and kind of felt she was missing out on stuff. It didn't take her long to realise that she wasn't, but those few months, whilst they were incredibly hard, were the best thing to happen to us as a family. She and my Dad realised just how much they absolutely could not be without one another, and she and I were only together Friday night through Saturday. We didn't have time to argue about the petty, silly things and spent real quality time together. We found out, firstly, how much we cared about and loved one another, and secondly, how incredibly alike we were. Our relationship from then on was great, to the point where my Dad admitted to feeling a little jealous as we were spending so much time together. Anyway, enough of the past, back to the present...
So, one surprising thing that came out of it all was not just that they asked us to fill out questionnaires about her behaviour, but I was also given one to fill out about mine (along with Lee as he is on the outside looking in - usually shaking his head and sighing) as I may end up getting assessed myself for Adult ADHD.
Oh, I should mention, that after years of struggling, and weeks of telling my parents that we were beginning the process, during which my mother has always said I was never that bad, my parents suddenly decided to tell me that I used to have almighty tantrums where I would stop breathing, right up until I was 7 or 8!
So now, we are into the process, and I have bared my soul. While the depression flags come more from Lee's side, the ADHD flags come from me and my mother (have I mentioned she has been known to break down and leave a store because the reorganised over the weekend and things weren't in their right places! I have never done that - though I might have sworn when they have done that I have never cried and left - dear god, I am turning into my mother and Freyja is turning into me - poor kid!! )
We have another appointment next week with the person at the clinic where Freyja will be going (the parent one was the starter) - I have no idea what her job title is, I just know she has a degree in Social Work - and then the week after that we see the Paediatrician for the first time.
At least I am not scared now. She told me not to feel a bad mother, as I have proved I am the opposite by making this step. I know everyone has been telling me this, but it feels good when the professionals tell you that - even if you still don't feel it as you carry your screaming, flailing child into her room for a time out, checking the clock on the way and starting the mantra.... two more hours.... two more hours.... only two more hours until bed time
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